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Did You Know
Public Policy Projects: A Fairer Future TOWARDS A MORE EQUITABLE DELIVERY OF CARE FOR THOSE WITH RARE DISEASES AND CONDITIONS IN THE UK
Living with a rare disease or condition poses many challenges. Over the past decade, improving the delivery of care for the 3.5 million people living with rare diseases or conditions within the UK has been the central focus of the work of many.
In January 2021, the UK Rare Disease Framework was published by the Government. This identified four key priorities to be addressed if continued improvement in services and support for the approximately 1 in 17 UK citizens affected by a rare disease is to be realised in the lifetime of this Framework.
The four priorities are:
1. Helping patients get a final diagnosis faster
2. Increasing awareness of rare diseases among healthcare professionals
3. Better coordination of care
4. Improving access to specialist care, treatments and medicines
Faster Diagnosis Standard: Skin Cancer
Best Practice Timed Pathways. Implementing a Timed Skin Cancer Diagnostic Pathway. This Guidance for local health and care systems Version 2.2 was published 25 March 2022 and included the involvement of Paul Osman, East of England Citizens' Senate Member https://www.eoecitizenssenate.org/member/paul-osman
Access to and delivery of GP services
This briefing examined data from 146 GP practices in England using the askmyGP online consultation system between 1 March 2019 and 30 September 2021.
- The analysis found that that 10% of patient care requests made to GP practices indicate a preference for a face-to-face consultation.
- Recently, the increasing use of online consultations systems such as askmyGP caused concern about the risk of digital tools creating inequalities by making it difficult for some patients to access care. However, the analysis shows that patients often choose remote over face-to-face consultations and that GP practices can mitigate the risk of digital exclusion via a blended approach.
Population Health Management
Infographic, showing top stats, aims and achievements from Bristol Inner City Primary Care Network (PCN).
This project aimed to improve the health and well-being of a group of people who were at higher risk of developing heart failure. They developed short, medium and long term aims including medication reviews, improvement of understanding on health conditions such as heart failure, reducing smoking rates and increasing physical activity for individuals and across the system reducing admissions to A&E and outpatients and appointments needed in General Practice.
This is a great example of proactive action and prevention in Population Health Management, which is the aim of the Long Term Plan.
A radical new vision for social care
How should we care for one another? And what might it take to turn our current thinking about care and the care system on its head? How might we tell a new story in which care is not seen as a cost but as an investment in social flourishing? Read the report....